Stop People Dying Too Young (the LeDeR programme)

A big part of our work in the North East and Yorkshire and Humber is around preventing people with a learning disability dying too young.

This is known as the LeDeR programme. Research has shown that people with a learning disability can die up to 29 years earlier than other people – and often these early deaths can be prevented.

In the North East we facilitate the Stop People with a Learning Disability Dying Too Young Group.

This group is made up of self advocates and family carers.

The group have spoken at local and national conferences, raising awareness of the issue.

They have also asked the national LeDeR steering group to support them to become LeDeR reviewers.

In Yorkshire and Humber we have run Learn and Share events to make sure that people know how health inequalities can affect people with a learning disability, and what needs to change.

For more information about this work contact Karen Parry

There is a response the group have written to the LeDeR Report in the downloads on the page.

There is a video that you can watch here