In the North East we facilitate the Stop People Dying Too Young Group. This group is made up of self-advocates and family carers, who have been working together for 5 years.

The group ask questions about why people with a learning disability and autistic people are at risk of dying much younger than other people. They create campaigns and speak up about inequality.

They demand that their lives are valued as much as everyone else’s.

Leder Annual Reports

The group always responds to the national annual report about the Leder programme.

Watch the video of our 2022 response here 

Watch a video of our 2021 response here

Watch a video of our 2020 response here

Watch a video of our 2019 response here 

 

Making plans for the end of your life

In 2023 the group made a film about people having the right to make choices about the end of their life. You can watch the film here

 

Emergency Health Care Plans

In 2022 the group made a video about Emergency Health Care Plans. You can watch the video here 

 

Values

The group came up with the values they want to see in the work to stop people dying too young in the North East and North Cumbria. You can watch the video here LeDeR Values 

 

Inquests

In 2021, the group created resources to help people understand what a Coroner does and what an inquest is.

You can watch the Coroner video here

You can watch the Inquest video here

You can watch Dawn talking about her dad’s inquest here 

You can see a BBC film about the work here

 

Poems

The group worked with Anthony from People Powered Press to write poems to remember people they loved who died too young. You can read their poems here 

 

Easy Read resources

You can find all the group’s work in Easy Read at the side of the screen.

For more information about this work contact Karen Parry